For those that might not know, Conner went into Texas Children’s Hospital late night on April 10th for some blood in his dirty diapers and has been in the hospital since. What was initially suppose to be a short stay has turned into a much longer ordeal.
Finding the Cause
Last week Conner was “scoped” (they ran a camera scope down his throat, into his stomach, and all the way into his small intestines), to see if they could find a reason for the blood in his diapers. They were able to find that the blood vessels in these areas were enlarged and as a result they did an ultrasound to see if they could find a reason why the vessels were enlarged. The ultrasound resulted in them finding a blood clot. This morning they did a MRI and liver biopsy in order to find out more about the clot and what might be causing it. We should have results of both later this week.
During his stay he has had 2 blood transfusions and at least 1 anti-body infusion in order to keep his blood counts up. Since his blood counts have a history of being both low and irregular they have also been pulling extra blood to run tests on. We have not been given the results of some of the more thorough blood tests yet. The other tests were just to check his blood counts and such.
Hearing Aids
While in the hospital, it is easier to get in for tests. As a result Conner has had the required hearing exam done and his hearing aids have been ordered. He is scheduled for a fitting on May 6th. So come the beginning of May Conner will have his hearing aids.
I will try to keep this site updated once we find out more about the blood clot.
mkoby Conner blood clot, hematology, liver biopsy, texas children's hospital
Conner @ Hospital
This update is for anyone that isn’t already aware…
Conner was checked into Memorial City Memorial Hermann hospital on July 12th for a urinary tract infection. He was still still recovering from the last infection when he was diagnosed with this most recent one. On July 16th, the doctors made the call to transfer Conner to Texas Children’s Hospital in the Houston Medical Center. Conner is still at Texas Children’s Hospital and will be there until at least the middle of this week.
What Happened?
Well, the two infections were pretty serious bugs. The doctors involved (including a pediatric infectious disease specialist) used the phrase “nasty” when describing the two different bacteria behind the infections. Because of the closeness of the two infections (time wise) the urologist decided to do a VCUG on Conner’s kidney/bladder functions, this was the reason he was transferred. A VCUG consist of putting a dye into the bladder so that when x-rays are taken, things become a little clearer and the doctor can get a better idea of what is going on.
The result of the VCUG caused the urologist to call for a
Vesicostomy. A small procedure that should relieve some of the pressure in Conner’s kidneys, hopefully lessening the chance for future infections, and buying time until a more cumbersome procedure can be done (when Conner is older). This procedure was performed yesterday and was labeled a success by the doctor.
What Else is Going On?
So not only is the kidney thing going on, but some of Conner’s blood counts are not where the doctors feel they should be. So, a team (it’s always “a team” at Texas Children’s) of hematologists, have been watching his numbers and are scheduled to do a bone marrow biopsy tomorrow so they can get a better idea of what’s going on with his blood counts. While they don’t have any specific answers for us at this time, they did say they should know more about a week after doing the biopsy.
Keep Praying
So right now, the best anyone can do is to keep praying for Conner. He is already bathed in prayer, but more is always welcome. He is surrounded by family and when he’s not being poked and prodded, he is quite happy and playful given his circumstances. I’ll try to update more frequently. I didn’t update sooner because there was a severe lack of substantial answers. But now we’re starting to see more answers than questions so I will be able to update with more regularity.
mkoby Conner Conner, infection, texas children's hospital
For those that might not know, Conner went into Texas Children’s Hospital late night on April 10th for some blood in his dirty diapers and has been in the hospital since. What was initially suppose to be a short stay has turned into a much longer ordeal.
