Conner Update 2009-08-11
For those that don’t already know, Conner came home 2 weeks ago today. We have since had 2 follow up appointments at Texas Children’s Hospital for
- Hematology and
- Audiology
Conner also starts physical therapy today due to his lack of head movement and not liking “tummy time.”
The results of the follow up appointments were that the doctors are pretty sure he doesn’t have Aplastic Anemia (they couldn’t say for absolute certain because the piece of bone they pulled during his bone marrow biopsy wasn’t a good enough sample). Conner will also have to have routine blood draws so that they can watch and chart his blood cell counts to see what they are like when he is well. The answers from these blood draws will help the hematologists determine what (if anything) he might have and help them better diagnose for treatments.
With regards to audiology, Conner is hard of hearing. He has what is known as “Minor Sensorineural Hearing Loss” which means he’s not deaf but he doesn’t hear things quite as loud. End result, he’ll need to wear hearing aids in both ears and it will make it difficult for him to learn how to talk (not impossible, just difficult).
We would like to thank everyone that prayed for Conner and us while Conner was in the hospital. It was comforting to know that we were being prayed for and thought about by some of our closest friends and family. I (Michael) would like personally thank everyone I know via social networks like Twitter (and might have never physically met), you people are awesome and deserve only the best in life.
